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A Heartfelt Thanks to Kerry!

On behalf of the PURA Syndrome Foundation I would like to express our heartfelt Thank You to Kerry Hildring for her service to the Foundation.

Since joining the board in January 2018, Kerry has diligently and passionately served both the Foundation and you, our families, as a Parent Liaison. Kerry has gotten to know many of you in the role and has made great contributions in giving of her time to both the role of welcoming new families as well as being instrumental in the success's of our annual conferences. Her voice and presence on the Board will be missed!

With Kerry's departure, Jennifer Beirling will be leading our Parent and Family out-reach work as the Family Liaison. As we working on a new structure to for our family support and communication. Look for the announcements soon! If you have questions, you can e-mail us at

In the mean time, a special toast and Thank You to Kerry! May the blessings of good luck be with you!


Dominic J. Spadafore, AIA


PURA Syndrome Foundation

The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis , management, and health . Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication , some facts may change later .