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2019 Boston Conference - Last Week!

Extended Registration!

Exciting news everyone! If you have not yet registered for the 2019 PURA Syndrome Foundation International conference, you're still in luck! Working with the hotel, we've been able to extend the conference registration to WEDNESDAY, June 5!

While the conference registration site is open and working, some of the date for Hotel Accommodation site may give some you some trouble due some technical difficulties. So, if you have any issues with the hotel rooms, please just call the front desk at: +1-617-472-1000.

Lastly as a reminder, you do need to register for both the conference and the hotel accommodations separately this year. We've notice a number of conference attendees are not yet registered for rooms at the hotel, so we want to make sure there are no surprises when you get there.

We're looking forward to seeing everyone in Boston!


The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis , management, and health . Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication , some facts may change later .