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Way to go CHICAGO!

A quick note to say "Thank you" to team Chicago and everyone who participated in the PURAperfect Night. Friends and Family as far away as Texas joined the party. Friends and Family from 3 continents donated items for the silent auction. Together they raised over $45,000 for the Foundation.


Thank you to everyone to helped and participated!


The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis , management, and health . Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication , some facts may change later .