Come Join Our Team!

The success of the PURA Syndrome Foundation comes with a need to grow our Board of Directors. We are currently seeking to fulfill the role of Vice President of the Board of Directors.

This role is generally to assist the president with policies and procedures, as well as providing additional perspective to the board. We have posted the job description here. Please consider helping us, so that we may continue to help you!

E-mail me your questions or interest: and please include 'Vice-President' in the subject.

Thank you! #PURAstrong!


President, PURA Syndrome Foundation