• Dominic J. Spadafore

A (late) WELCOME!


As it is the end of the year, I find myself going over a number if lists.

Lists of what I did this past year. A list of Thank You cards for presents. A list of places our family wants to go next year.

And ultimately, a list of things that I need to finish. "The Late To Do list" if you will.

Lists provide some guidance and a small amount of dread for me.

Upon my Late To Do list is to provide a proper WELCOME to our newest Board Member here at the PURA Syndrome Foundation: Jennifer Bierling!

May of you know of Jennifer already and she's been talking with us about how to help for several months over the summer. She officially joined the board at our September meeting, I'm I'm embarrassed to just now getting around to announcing it!

So far Jen has stepped right in and helped with a number of things as our first General Board Member. You might have noticed that she is taking over the new Family Liaison Group.

Jen lives in St. Louis, Missouri and can be contacted at: j.bierling@pura-syndrome.org You can find out more about Jen on our web-site too!

A (LONG overdue) WELCOME!

D

Dominic J. Spadafore, AIA

President

PURA Syndrome Foundation

d.spadafore@pura-syndrome.org


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The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis , management, and health . Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication , some facts may change later .