The PURA Syndrome Foundation welcomes contact from the community.
The foundation has parent liaisons who support families.
If you are a new PURA family, welcome !
To make contact with the Foundation and/or the private parent's group, please email:
Parent and Family Liason
The PURA Syndrome Foundation liaison can be reached at firstname.lastname@example.org.
Data will be processed and used according to the PURA Syndrome Data policy which can be read on our website at https://www.purasyndrome.org/foundation