2020 PURA Syndrome Conference


The 5th Annual PURA Syndrome Conference scheduled for June 26th through June 28th, 2020, in Cambridge, England, United Kingdom,
has been canceled.


 Due to uncontrollable risks associated with the Coronavirus (COVID-19) and it's unpredictable spread, the Foundation has decided to cancel the 2020 PURA Conference this year.   In place of this year’s conference, we will host a series of webcasts highlighting research updates, the patient registry, and other topics of interest to our families.  We understand the greatest value in attending our annual conference is the personal interaction between family members and researchers, and we are committed to providing this exchange, even if in a virtual way.