SAVE THE DATES!
2020 PURA Syndrome Conference
26 June 2020 - 28 June 2020
The 5th Annual PURA Syndrome Conference will be held June 26th through June 28th, 2020, in Cambridge, England, United Kingdom, at the Wellcome Genome Campus.
The Conference provides a great way for families to connect with one another and learn more about this rare genetic condition. Members of the Global Research Network will, once again, educate our community and provide updates on research endeavors.
Stay tuned for more details and we hope to see you there!