2020 PURA Syndrome Conference

26 June 2020 - 28 June 2020



The 5th Annual PURA Syndrome Conference will be held June 26th through June 28th, 2020, in Cambridge, England, United Kingdom, at the Wellcome Genome Campus.


The Conference provides a great way for families to connect with one another and learn more about this rare genetic condition. Members of the Global Research Network will, once again, educate our community and provide updates on research endeavors.


Stay tuned for more details and we hope to see you there!

The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis , management, and health . Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication , some facts may change later .