Way to go CHICAGO!A quick note to say "Thank you" to team Chicago and everyone who participated in the PURAperfect Night. Friends and Family as far away...
A Global Community is:The PURA Syndrome Foundation strives to be a global organization that fulfils our mission of supporting a global community. So, what...
Celebrating a (not so) rare 200!Not long ago the 200th case of PURA syndrome was diagnosed globally. This is momentous news for all of us! And I welcome this news as...
Foundation reflections and thank youDear Friends of PURA syndrome: As we start 2018, I have been reflecting on all that has happened over the past year. And it’s been a...
Come Join Our Team!The success of the PURA Syndrome Foundation comes with a need to grow our Board of Directors. We are currently seeking to fulfill the...
