How to reach the President?
One of the Joys of modern technology is that it can find you. But it doesn't always work... Dear PURA friends and family: Earlier this...
PURA SYNDROME FOUNDATION BLOG
It's the everyday in life...
I have several things to share today with all of you. And as is often the case, I'm very proud to do so. 1) For the keen of eye, you...
Expanding our PURA World
Dear fellow PURA families: While the blessings of my life have allowed me to travel to many places and experience many cultures, I have...
Welcome Dr Rebecca Mawby - PURA Syndrome Foundation awards first Fellowship Grant
Clinical research fellow position at University of Southampton to establish and administer the Global Patient Registry, undertake...
Ever Forward!
Catching up on changes at the Foundation. A lot continues to happen, and it's about time that I catch up everyone. I'm writing today...