Starting the PURA Registry!I thought I'd remind everyone, in case you missed it, the PURA Global Registry is now started! This is a very exciting time for all of...
Welcome to Kadidia Cooper!I am excited to announce that Kadidia Cooper is joining the PURA Syndrome Foundation Board of Directors! Kadidia is joining us as our...
Great to see you in Boston!Dear PURA Family: It was a wonderful time seeing you in Boston and I'm so glad that you were able to make it there. In all, 102 people...
WELCOME! To Todd Vaught!I am excited to announce that Todd Vaught has joined the PURA Syndrome Foundation Board of Directors. Todd is bringing his talents as...
2019 BOSTON Agenda!In Case you missed it: Here is the 2019 Boston Conference agenda. Check it our here! You will also be interested to know that the...