I thought I'd remind everyone, in case you missed it, the PURA Global Registry is now started! This is a very exciting time for all of...

I am excited to announce that Kadidia Cooper is joining the PURA Syndrome Foundation Board of Directors! Kadidia is joining us as our...

Dear PURA Family: It was a wonderful time seeing you in Boston and I'm so glad that you were able to make it there. In all, 102 people...

I am excited to announce that Todd Vaught has joined the PURA Syndrome Foundation Board of Directors. Todd is bringing his talents as...

In Case you missed it: Here is the 2019 Boston Conference agenda. Check it our here! You will also be interested to know that the...