Letter from the PresidentI hope this message finds you healthy and well. As I look ahead to 2021, it is also with deep, deep gratitude and appreciation that I am...
Meet the New President of the PURA Syndrome Foundation The PURA Syndrome Foundation is pleased to announce the appointment of Amanda Shanks to Board President for the term of three years.
Welcome Our New President Amanda Shanks!Exciting News! I'm glad to be able to announce to you some exciting news at the Foundation! The PURA Community has grown and changed...
Just another Thursday?I woke up with morning and reviewed the litany of appointment reminders that have become common place with our modern technology and a...
Registry UpdateDear PURA community: I hope you are all healthy and this finds you well. I am sure that we are all standing resilient and vigilantly...
