Hi! My name is Karen Bennett and I am the USA Parent Liaison. I am a single Mom of two boys, 26 and 14 years old. My youngest son, William, was diagnosed with PURA in 2015. I sometimes get asked what it's like to be a single Mom of a medically complex child. Well, I would have to say it's tiring, educating, enlightening, exhausting, but the most important thing is... it's rewarding. William has taught me so much. He has shown me how to treasure each and every moment an