Research

PURA Gene Review Published in "Frontiers in Genetics"

Stefano's Rare Disease Day Story

PURA Gene Review Published in "Frontiers in Genetics"

The PURA Syndrome Foundation, in collaboration with the Global Research Network, is happy to share a new review of the PURA gene, "The...

Update on Research from the GRN

Despite facing several challenges related to COVID-19 in 2020, the PURA Syndrome Global Research Network (GRN) has been hard at work over...