As it is the end of the year, I find myself going over a number if lists. Lists of what I did this past year. A list of Thank You cards for presents. A list of places our family wants to go next year. And ultimately, a list of things that I need to finish. "The Late To Do list" if you will. Lists provide some guidance and a small amount of dread for me. Upon my Late To Do list is to provide a proper WELCOME to our newest Board Member here at the PURA Syndrome Foundation:

On behalf of the PURA Syndrome Foundation I would like to express our heartfelt Thank You to Kerry Hildring for her service to the Foundation. Since joining the board in January 2018, Kerry has diligently and passionately served both the Foundation and you, our families, as a Parent Liaison. Kerry has gotten to know many of you in the role and has made great contributions in giving of her time to both the role of welcoming new families as well as being instrumental in the su