I am excited to announce that Kadidia Cooper is joining the PURA Syndrome Foundation Board of Directors! Kadidia is joining us as our Treasure. Kadidia brings an international perspective to the board, having grew up in East Germany and was a young girl when the Berlin wall fell. She has focused her carrier in finance and non-profits. Kadidia is currently the Executive VP and CFO at Valley PBS, a non-profit committed to enriching the lives of California Central Valley residen

Dear PURA Family: It was a wonderful time seeing you in Boston and I'm so glad that you were able to make it there. In all, 102 people attended, representing 6 countries! We got a lot of research updates and had some great conversations about ourselves: How to help plan for the future, the importance of taking care of the care giver, sharing our personal stories, and much more. We are processing the videos of many of the presentations and hope to start to share them in th