Welcome Dr Rebecca Mawby - PURA Syndrome Foundation awards first Fellowship Grant
Clinical research fellow position at University of Southampton to establish and administer the Global Patient Registry, undertake research into the Natural History of PURA syndrome and publish future papers. June 2018 - The PURA Syndrome Foundation previously announced that it had awarded a research grant to the University of Southampton, in the United Kingdom. The £20,000 (approx. $26,700) grant directly fulfils a portion of the Foundation’s mission to further research into