Dear Friends of PURA syndrome: As we start 2018, I have been reflecting on all that has happened over the past year. And it’s been a great year! We’ve celebrated the 3rd anniversary of the PURA syndrome being first identified, we are also celebrating the second year of the Foundation. We’ve had a number of firsts: Our first travel grant - to bring a researcher to our 2017 Conference in Philadelphia Our first Fellowship Grant for research - to support research with the Globa