Together as a global community...
This past weekend the PURA Syndrome Foundation Board of Directors conducted its November meeting. The meeting lasted around 2 hours, slightly longer than usual. We reviewed the treasurer’s report, reviewed several proposals and talked about business issues of the board. Pretty boring stuff, from the sound of it. But it was not really boring at all! I am proud to announce that the PURA Syndrome Foundation has awarded its first research grant. This directly fulfils a part of