Dear PURAperfect Family: It has been about a month since I first got to meet a number of you, and less than 5 months since joining the PURA Syndrome Foundation. As I sit here at a computer screen, in a quiet house at the end of a day, it is finally starting to sink in how much has changed in my life in that short time. Some of the most profound life changes that I'm experiencing are involving the Foundation itself. Notably, the Foundation has successfully completed the recent