Â
Donate
Home
PURA Syndrome Foundation
Join
PURA Syndrome
Resources
For Families
PURA Family
Contact Us
Events
Celebrating 5 Years
2021 Conference
2020 Conference
2019 Conference
2018 Conference
Research
PURAregistry
Research News
GRN
Privacy Policy
More
Use tab to navigate through the menu items.
PURA SYNDROME FOUNDATION BLOG
PURA Syndrome Foundation Blog
Recent Blog Posts
PURA Gene Review Published in "Frontiers in Genetics"
Stefano's Rare Disease Day Story
Blog Archive
March 2021
(1)
1 post
February 2021
(5)
5 posts
October 2020
(2)
2 posts
May 2020
(1)
1 post
April 2020
(2)
2 posts
March 2020
(1)
1 post
December 2019
(2)
2 posts
November 2019
(2)
2 posts
July 2019
(2)
2 posts
June 2019
(3)
3 posts
April 2019
(4)
4 posts
November 2018
(1)
1 post
September 2018
(1)
1 post
August 2018
(1)
1 post
June 2018
(2)
2 posts
May 2018
(1)
1 post
April 2018
(1)
1 post
February 2018
(1)
1 post
January 2018
(1)
1 post
December 2017
(2)
2 posts
November 2017
(1)
1 post
October 2017
(1)
1 post
August 2017
(1)
1 post
June 2017
(2)
2 posts
May 2017
(4)
4 posts
Search By Tags
ALS
Disability Awareness
Epilepsy
Fragile X
gene review
published research
PURA Research
PURA Syndrome
Rare Disease
Rare Disease Day
