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4th Annual PURA Syndrome Conference 
Boston, USA 


Saturday June 22nd - Sunday 23rd 2019

Conference Information


For the 4th year, the PURA Syndrome Foundation welcomed families of individuals diagnosed with PURA syndrome, medical and research professionals and other interested attendees from around the world.


Taking place in Boston, MA, at The Boston Marriott Quincy, this two-day conference offered current medical and research information, networking opportunities, and support to those interested in PURA syndrome. 

Saturday Presentations

Sunday Presentations

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