4th Annual PURA Syndrome Conference 
Boston, USA 


Saturday June 22nd - Sunday 23rd 2019

Conference Information


For the 4th year, the PURA Syndrome Foundation welcomed families of individuals diagnosed with PURA syndrome, medical and research professionals and other interested attendees from around the world.


Taking place in Boston, MA, at The Boston Marriott Quincy, this two-day conference offered current medical and research information, networking opportunities, and support to those interested in PURA syndrome. 

Saturday Presentations

Sunday Presentations

The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis , management, and health . Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication , some facts may change later .